A few months ago I learnt that I had been successful in my application to be a member of the Scientific Advisory Board for the Brain Tumour Charity. This basically means I can help in some small way by reading through research proposals and working with neuroscientists to distribute funding to the most promising applicants.
So far it has been a thoroughly eye-opening experience as I have seen firsthand just how strong the competition for funding really is. The work that the charity does still amazes me and without them, millions less would be spent on research or awareness every year.
I have truly valued hearing from other families affected by brain tumours, each with their own unique and touching story to tell. Just this week I was fortunate enough to be invited along to the Structural Genomics Consortium in Oxford for a laboratory tour. Here I learnt that it can take years to re-create the proteins required for testing (the first step on the way to finding medicinal cures) and that they are one of only a few groups of scientists worldwide willing to share their investigations with the world (other scientists keep their work closely guarded in pursuit of financial gain from pharmaceutical companies). Their hope it that this will speed up the end result that so many of us affected by brain tumours are hoping for.
The sheer scale of the equipment they require totally floored me and each piece costs thousands of pounds. The funding that the charity receives goes in some way to support these scientists in their projects. It just reminded me that although they may have a long way to go, we have some brilliant minds focusing their lives’ work on a healthier, happier future for our world. If I can support them in any way I will and I hope other people may read this and send a few pennies in the direction of The Brain Tumour Charity.
On a personal note, we have had a beautifully sunny week and I wanted to share this lovely smile with you! I’m so lucky to have a husband as wonderful as you Alex! Xx